Sunday, October 25, 2009

It's the same old story...

It's the same old story; Same old song and dance -- Aerosmith, 1974 "Same Old Song and Dance"

Today was the fourth attempt to come off ECMO. Again today his blood pressure was good but we were on high ventilator settings. Since this would still not allow for room to move up should he need it, we have remained on ECMO. I really wish there was more to report...

Andrew was given a half dose of surfactant this evening and his hemofilter has been set to pull some fluid off of him. It looks like we will try again on Monday.


  1. In cases like this, a day without backsliding is a day of progress. The body needs time, and time is the hardest thing for those around the patient to give it. Hang in there, Gene.

  2. I agree with Lynne. In certain fields, the saying is, as long as everybody is alive at the end of the day -- it is a GREAT day! Andrew just needs time. Not easy on a parent when you want to "fix" immediately because you love deeply.
    You remain in our prayers,
    Elizabeth and Larry

  3. "Patience and perseverance have a magical effect before which difficulties disappear and obstacles vanish." - John Quincy Adams.

    Some things can't be rushed...even though it would certainly help if they could be. Stay strong and continue to have faith. Everything will work out in time - God's time, not ours.

    For everything there is a season,
    And a time for every matter under heaven.
    Ecclesiastes 3:1

    God's continued peace and love be with you all...
    Tim, Donna, Alex & Lawren

  4. "time heals all wounds". Hang in there y'all. God is the great healer and has his hands working on your little man. Praying for you guys.

  5. We will do what we have done all along- take it one day at a time. Andrew is healing and getting stronger each day. He will solo when he is ready.
    Hugs and kisses.

  6. Praying for Andrew's lungs to get stronger. I'm sure it's hard to be patient right now, but hang in there! Sue

  7. Waiting is not what parents like to do. We are continuing to pray for Andrew. Maybe Monday will be the day. Stay strong. LuAnne

  8. We surely have been thinking about you all. Thankful that Andrew's blood pressure is good, and continued prayers for lung improvements.
    Love, Alan & Jeri

  9. Good Morning:

    Thank you for updating all of us on Andrew!!
    You all are hanging in there and thats what counts for today!!
    We embrace all of you and praying hard for a Monday of hope!!

    A peaceful Sunday Andrew!
    Much Love to all!

  10. Rest all of you today and we pray that tomorrow will be the day that we all have been waiting for.
    Love to the three of you
    Aunt Sandy and Uncle Ken

  11. "Patience and preserverance..." I like that quote! It seems that could be written by Andrew himself! Taking this to heart, and praying for the 3 of you and all else involved. Sending lots of love and hugs, Mom & Tom

  12. cdh roller coaster,2 steps forward,one back. every day he rests gives him a step forward. baby steps,baby steps,praying for you guys every day, and for a CURE . maybe all his trials and troubles will contribute to just that, a cure .
    Peace be with you
    barbara ford zagorski
    carter's gramma

  13. Slow and steady wins the race!!

    Much love and prayers to you...

  14. Praying hard for those little lungs to keep getting stronger! Hang in there mom and dad!

    Love you guys,

  15. Still praying that Andrew will hang in there. Asking God in his infinate wisdom to grant you peace and sustain you through this roller coaster of a journey.

  16. We are praying for continued strength for all of you. Keep fighting day at a time, as someone said earlier, slow & steady wins the race!

    God Bless you all. You remain in our constant thoughts & prayers.

    Sarah, Chris & Noah Lawless

  17. I have found your site through Carter's. My daugther is a CDH survivor, and the best I can tell you is; take it one day at a time. Difficult at the time but hang on, and keep the faith. Our family is praying for yours.

    Karen, Carl, and Madelyn Toews

  18. you are in our prayers.
    Heavenly father please cary Andrew and give him the strength he needs to come off ECMO tommorow. Watch over him as they do this. Give his parents Gene and Becky the strength they need to contiune to be there by his side. Keep them healthy. Watch over all of them.

  19. Even though TIME and ECMO have become "four letter words" in your vocabulary that you REALLY don't like, think about what they have done for Andrew. He has done so well with this huge challenge presented to him.... We are going to be praying SO hard for all of you today... Go Andrew go!

    Love, L