Please keep the prayers going for Andrew today! They have discovered that he has a blood clot in the right atrium of his heart. They have increased the dose of heparin he is on which will help to stop the clot from growing or new ones from forming. We will wait and see for now what happens and pray to God that it does not get dislodged and go to his lungs which would be fatal. They have seen these clots sometimes disappear on their own and not cause any damage- that is what we want for Andrew!
His cardiothoracic surgeon is very negative and all doom and gloom which Gene and I find very frustrating! We know his heart defect is a big one, but there is still hope. Everyone else thinks that we still have a shot at making it even though it will be an all uphill battle- that is what Gene and I are choosing to believe! Please pray that Andrew will be able to survive this and have a good quality of life!
He has been even more stable today since they repositioned his ecmo catheter and his blood pressure has been stable. His nurse and respiratory therapist who runs his ecmo machine seem to think that was the cause of his frequent lower blood pressures. Hopefully we can continue to lower his epinephrine and dopamine today which have been helping to keep his blood pressure up. The difference in the type of ecmo that Andrew is on compared to what he would have been on is that it does not bypass his heart- so he is having to rely on medication in addition to his own heart working properly. His nurses are fantastic and gave him a bath after the many tests he had done today. He is very puffy from the ecmo which is normal- now that his blood pressure is more stable, they will probably start a medication that will help him to pee some of this extra fluid out of his system.
We love this baby so much and still are holding out every hope that we will bring him home with us one day! Thanks so much for all the encouragement and prayers- they mean so much to us right now! - Becky